As school comes to an end, I decide to
spend the summertime with my instrument.
I read music theory for two hours,
but my hands yearn for the touch of six strings.
Fingers position themselves to stroke bliss.
But my phoneās troubled with recurring rings.
****, it was mom telling me I have class!
I raced for my backpack, and I told her:
I will not slack. Papers grew so lonely
without their folder to cuddle them close.
I couldnāt care to organize them cause
usually, Iād lay in my seat repose.
Ionic bonds? What do they even mean?
And what the heck is ādouble replacementā?
Okay, I should start paying attention.
I grasp the pen. I notice the tension.
As soon as I write, my hands start to shake.
I start over. Now hands begin to ache.
What in the world is happening to me?
Two words: I scream. Head jerks, and my legs shake.
It has to be a dream. It has to be!
Donāt want to move, but I have to take notes.
Why are random words bursting out my throat?
Iāma be real. I need my mommy!
Class is over. I exclaim to mother:
my fingers refuse to stop tremoring.
And Iām getting these tics. What set it off?
First thing I do is reach for my guitar.
I canāt hold it. I canāt ******* grab it.
Eyes of terror stay written on my face.
The next day I was in a wheelchair.
I cannot look straight- straight up to the sky
or look in front and into peopleās eyes.
My right-hand curves to the left. A tendon
sinks into my flesh, and my left fingers
cramp up from being intertwined like vines.
They are stiff. Hideous. These are not mine.
But it does get much better with some time.
I can walk again, talk again, and write.
But all good things come with downfalls, donāt they?
My brain disease will come at me with might.
And I refuse to give up on this fight.
There will be a time when I reach stage five.
And I know it wonāt be a pretty sight.
Iām ready for what will happen to me.
Dearest guitar, please know youāre my heaven.
Why bother to fret? Causeā when the time comes
Iāll see you again in a few seconds.
Last year I was diagnosed with a brain disease, but that won't stop me from doing what I love.